Join MitoAction and Dr. Mark Korson, VMP Genetics, as he discusses sick days, navigating the ER as a patient, and the …
Preparing For a New Normal in COVID-19 and Being Your Best Advocate
The Power of Rare Disease Advocacy
Advocates are the key to creating real change. Learn the power that you as a patient and caregiver have, what you …
NORD Public Policy Team
A conversation with the public policy team for the National Organization for Rare Disorders (NORD).Topics of discussion …
