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The Power of Rare Disease Advocacy
Advocates are the key to creating real change. Learn the power that you as a patient and caregiver have, what you …
NORD Public Policy Team
A conversation with the public policy team for the National Organization for Rare Disorders (NORD).Topics of discussion …
Medical Ethics and Patient Rights
Advocating Responsibly and Communicating Effectively
During a time when families with children with mitochondrial disease may face accusations of medical child abuse or …
