EPISODE HIGHLIGHTSTasia, can you tell us about yourself and the work you do?I'm 31 and I was diagnosed at a young age …
Parents as Rare Podcast Episode 95: Mito Awareness Week & Parent Stories from the FAOD Community – Live from the IMC
PARENTS AS RARE - EPISODE 095Patient Stories from the FAOD Community - Live from the IMCIn this special, live-recorded …
Energy in Action Podcast Episode 94: Barth Syndrome – When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development
Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug …
Energy in Action Podcast Episode 93: Navigating school for our kiddos!
Navigating School for Our KiddosBeth Folcher is a parent and teacher. She joins us to kick off the school year with tips …
Parents as Rare Podcast Episode 92: Patient Stories from the FAOD Community – Live from the IMC
PARENTS AS RARE - EPISODE 092Patient Stories from the FAOD Community - Live from the IMCI encouraged the FAOD community …
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