Planning & Preparation
Being prepared is an important way patients with mito can take control of their lives. At MitoAction, we’ve created this information to help relieve some of the anxiety and help families plan and prepare.
When you have a rare disease, planning ahead and being prepared in critical. Living every day with mitochondrialRelated to the mitochondria. disease as an adult patient or a parent caring for an affected child can be completely consuming and overwhelming. Many of us forget or put off thinking about the future, especially when the future feels so uncertain. MitoAction hopes this information can relieve some of the anxiety and help families be well prepared.
Health Insurance
Learn more about how to take full advantage of your health insurance and document things to prevent future issues.
Disability Benefits
Disability benefits may be available to provide mito patients and families with critical services and financial support.
Mobility Devices
Mobility devices are important for people with Mito or any neuromuscular diseases, and can help improve safety and quality of life.
Vehicle Modification
Vehicle modifications like ramps and wheelchair lifts can make a van or other car more accessible, although it can be a complicated process.
Estate Planning
Estate planning puts a plan into place and it dictates how your personal affairs would run if you were incapacitated or deceased.
Medical Child Abuse
Unfortunately, many mito families get accused of Munchausen Syndrome, Munchausen Syndrome by Proxy (MSBP) and Medical Child Abuse allegations.
