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MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Fatty Acid Oxidation Disorders
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Timothy Syndrome

Russell Weller Mar 13, 2023

A rare multisystem genetic disorder affecting the heart and several other organs including the skeleton, metabolic system and the brain.

Upcoming Events

Apr 27

4:30 pm - 6:00 pm

MitoSocial Hosted by MitoAction & MitoCanada

Apr 30

7:00 pm - 8:00 pm

Expert Series: Updates on Cardiomyopathy: Diagnosis and Management in FAOD

May 1

6:00 pm

CPEO & Me

Expert Series

Apr 30

7:00 pm - 8:00 pm

Expert Series: Updates on Cardiomyopathy: Diagnosis and Management in FAOD

May 15

7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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We still have tickets for the Sandra K. Russell Derby Day Benefit for Mito on Saturday, May 3, 2025 — the hottest Derby Day event in Boston!

Enjoy big hats, bow ties, incredible silent and live auction items, and signature mint juleps while helping raise money to improve the lives of patients and families affected by mitochondrial disease.