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MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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New Patient Kit for FAOD

View our FAOD New Patient Kit online, download it as a PDF, or you can also request a paper copy of the using the form below.

FAOD-New-Patient-Kit-Updated-3_10_23

Request a New Patient Kit (FAOD)

"*" indicates required fields

Name*

First Last

Address*

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

Ethnicity

Primary Language

Gender

Pronoun

Email*

Phone

What is your connection to FAOD?*

Patient

Parent

Spouse

Caregiver

Son

Daughter

Sibling

Grandparent

Grandchild

Aunt

Uncle

Cousin

Niece

Nephew

Friend

Teacher/Educator

Medical Professional

Physician

Nurse

Genetic Counselor

Social Worker

Researcher

Industry Rep

Other

Diagnosis Type

What is your diagnosis?*

ACAD9 Deficiency

CACT Deficiency

CPT I Deficiency

CPT II Deficiency

CUD/Primary Carnitine Deficiency

GAII/MADD Deficiency

LCHAD Deficiency

MCAD Deficiency

MCKAT Deficiency

M/SCHAD Deficiency

SCAD Deficiency

TFP

VLCAD Deficiency

Undiagnosed

Other

What is your child's diagnosis?*

ACAD9 Deficiency

CACT Deficiency

CPT I Deficiency

CPT II Deficiency

CUD/Primary Carnitine Deficiency

GAII/MADD Deficiency

LCHAD Deficiency

MCAD Deficiency

MCKAT Deficiency

M/SCHAD Deficiency

SCAD Deficiency

TFP

VLCAD Deficiency

Undiagnosed

Other

What is your loved one's diagnosis?*

ACAD9 Deficiency

CACT Deficiency

CPT I Deficiency

CPT II Deficiency

CUD/Primary Carnitine Deficiency

GAII/MADD Deficiency

LCHAD Deficiency

MCAD Deficiency

MCKAT Deficiency

M/SCHAD Deficiency

SCAD Deficiency

TFP

VLCAD Deficiency

Undiagnosed

Other

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Last Presentation

Expert Series: Updates on Cardiomyopathy: Diagnosis and Management in FAOD
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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We still have tickets for the Sandra K. Russell Derby Day Benefit for Mito on Saturday, May 3, 2025 — the hottest Derby Day event in Boston!

Enjoy big hats, bow ties, incredible silent and live auction items, and signature mint juleps while helping raise money to improve the lives of patients and families affected by mitochondrial disease.

Buy Tickets

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New Patient Kit for FAOD

Request a New Patient Kit (FAOD)

Upcoming Events

MitoSocial Hosted by MitoAction & MitoCanada

CPEO & Me

Weekly Support Call

Expert Series

Last Presentation