Mito Resources
No matter where you are on your journey with mitochondrial disease, MitoAction is committed to connecting you with the most comprehensive resources available as well as a network of support.
No matter where you are on your journey with mitochondrial disease, MitoAction is committed to connecting you with the most comprehensive resources available as well as a network of support. We exist to help you on your journey and to ensure you that you are not alone. Whether you are newly diagnosed, still unsure of your diagnosis, caring for a child living with mito, or a caregiver, family member, or friend, we are here for you.
Our comprehensive catalog of resources span from practical daily tips to information that may be helpful to a clinician seeing a mito patient for the first time. We aim to empower you to take control of your care and to be your own advocate while surrounding you with a like-minded community who are here to support you.
MitoAction Resources
- Mito New Patient Kit
- Mito Support Calls
- Monthly Expert Series
- Energy in Action Podcast Series
- MyMito Mobile App
- MitoAction Events Calendar
- Disability Benefits & Planning Resources
- Newsletter Sign-Up
Self Care and Mental Health
- Caring for Yourself Before, During and After Your Next Doctor Visit
- “After The Shock: Getting You Back On the Road to Resilience When Crisis Hits You Head On”
- “Breath Taking”
- Grief and Mito
- Accessible Mindfulness, Meditation & Yoga Resources
- Dr. Nierenburg Expert Series
Doctor Visit(s) Resources
- Find a Doctor
- Navigating Illness with Mito: Protocols, Planning for Emergencies, etc.
- How to Prepare for Your/Your Loved One’s Next Doctor’s Visit!
Parent Resources
Accommodations in School
- Understanding Mito in the School World (Energy 4 Education Video):
- Mito and the School System by Age
- IEPs and 504s and so Much More
Clinical Trial Information
Working with Mito
- Working with Mito Disease (Energy in Action Podcast)
