Being a young adult with mito can be isolating, especially when trying to help others to understand your disease. MitoAction is here to help you succeed with transitioning to adult health care and the next phase of life. Patients, families, and health care providers have expressed a need for resources like this and we’ve heard you loud and clear.
We’ve researched medical resources, and have talked to young people, parents, doctors, nurses, and patient advocates to find out what you want and need to know about.
Our goal is to provide you with ways to communicate with friends, teachers, or anyone else seeking to support and understand your journey; tools to help guide your transition to adult health care; tips for success in college, employment, and independent living; and stories of real people with real experiences living their lives to the fullest.