MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Calendar of Events
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Expert Series: Pyruvate Dehydrogenase Complex Deficiency Essentials: including current trials/research and prospects for newborn screening
Expert Series: Pyruvate Dehydrogenase Complex Deficiency Essentials: including current trials/research and prospects for newborn screening
Dr. Bedoyan will present the essentials for understanding pyruvate dehydrogenase complex deficiency (PDCD) and detail current clinical trials and therapeutics research for this disorder at UPMC Children’s Hospital of Pittsburgh. He will also describe the elements of newborn screening (NBS) and update the audience of current research and prospects for future PDCD NBS.
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
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Open Mito Mic & Art Show
Open Mito Mic & Art Show
A call to ALL visual artists, poets, comedians, singers, quilters…and creators in our Mito Community!! MitoAction’s Second Annual Mito Mic and Art Show will be hosted on November 10 at 6pm EST! All submissions are due October 21, 2024! We all know that living with mitochondrial disease forces us, constantly, into spaces where we must […]
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FAOD Monthly Evening Support Call
FAOD Monthly Evening Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
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Our Space: A space for young adults with Mito and FAODs to connect and network
Our Space: A space for young adults with Mito and FAODs to connect and network
Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own set of challenges and MitoAction is committed to ensuring that each member of our young adult community feels supported and part of a larger community.Don't […]
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Monthly MitoChampions Meeting
Monthly MitoChampions Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. Interested […]
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FAOD Monthly Afternoon Support Call
FAOD Monthly Afternoon Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, […]
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Closed for Thanksgiving
MitoAction will be closed for Thanksgiving November 27th through 29th. We hope everyone has a happy and healthy holiday. We are so thankful for our incredible MitoAction community!
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