MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Calendar of Events
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1 event,
2 events,
Expert Series: Expanded Access and Compassionate Use of Experimental Therapies
Expert Series: Expanded Access and Compassionate Use of Experimental Therapies
"Expanded Access" and "Compassionate Use" are terms that are utilized in our rare disease community, but what do they mean? How do patients learn about, get involved, better understand the qualifications, and talk with their doctor about participation in either of these programs? Join MitoAction and Dr. Koenig as we dive deep into better understanding […]
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
