MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Calendar of Events
S Sun
M Mon
T Tue
W Wed
T Thu
F Fri
S Sat
1 event,
0 events,
0 events,
1 event,
Wondering Wednesdays: Ask the Genetic Counselor
Wondering Wednesdays: Ask the Genetic Counselor
Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help make genetics feel more accessible to everyone.
2 events,
Expert Series: Modeling mitochondrial diseases with patient-derived stem cells and brain organoids
Expert Series: Modeling mitochondrial diseases with patient-derived stem cells and brain organoids
In this talk, Dr. Alessandro Prigione will discuss how stem cells are generated from patients to derive models of the brain (such as neurons and brain organoids). He will further discuss […]
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
0 events,
0 events,
1 event,
Expert Series: Embracing Adulthood: Roundtable Discussions on Puberty and Reproductive Health: For FAODs 18+
Expert Series: Embracing Adulthood: Roundtable Discussions on Puberty and Reproductive Health: For FAODs 18+
For many young people, puberty and reproductive health are important milestones in emerging adulthood. Yet, clinicians lack information on these topics for people with FAODs, which impacts their ability to […]
0 events,
1 event,
Expert Series: FAOD For Beginners
Expert Series: FAOD For Beginners
This session will review how energy is produced and used in your body, and how all of the different FAOD disorders affect a patient and their metabolism. If you are […]
1 event,
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
0 events,
0 events,
1 event,
Expert Series: Embracing Adulthood: Roundtable Discussions on Puberty and Reproductive Health: For FAOD Parents/Caregivers
Expert Series: Embracing Adulthood: Roundtable Discussions on Puberty and Reproductive Health: For FAOD Parents/Caregivers
For many young people, puberty and reproductive health are important milestones in emerging adulthood. Yet, clinicians lack information on these topics for people with FAODs, which impacts their ability to […]
1 event,
Our Space: A space for young adults with Mito and FAODs to connect and network
Our Space: A space for young adults with Mito and FAODs to connect and network
Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own set of challenges and MitoAction is committed to ensuring that each member of our young adult community feels supported and part of a larger community.Don't […]
0 events,
1 event,
FAOD Monthly Evening Support Call
FAOD Monthly Evening Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
1 event,
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, […]
0 events,
1 event,
1 event,
INFORM Lecture Series
INFORM Lecture Series
The lectures from INFORM, similar to our Expert Series presentations, will be held every month on the Third Monday, until Jun 17, 2024. If you are interested in joining this presentation, […]
0 events,
1 event,
Monthly MitoChampions Meeting
Monthly MitoChampions Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. Interested […]
0 events,
1 event,
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, […]
0 events,
0 events,
0 events,
0 events,
1 event,
Wondering Wednesdays: Ask the Genetic Counselor
Wondering Wednesdays: Ask the Genetic Counselor
Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help […]
1 event,
FAOD Monthly Afternoon Support Call
FAOD Monthly Afternoon Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call […]
1 event,
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, […]
0 events,
0 events,
0 events,
0 events,
0 events,
2 events,
Expert Series: The Cell Danger Response, Healing, and Mitochondrial Disease
Expert Series: The Cell Danger Response, Healing, and Mitochondrial Disease
When genetic or environmental conditions threaten normal cell functions, an ancient cellular response is activated that first triggers inflammation, then initiates the cellular defenses and steps needed to repair any […]
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, […]
0 events,
