MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Join MitoAction, along with host Katie Jackson, to connect with other families, caregivers and patients in your local community. Build your local community of support, give and share support and know that you are not along on your journey with mitochondria disease. No matter what stage of the journey you are in, you are welcome […]
If you live in Nebraska, this is a wonderful opportunity for you to connect with other families in your local community who are affected by mitochondrial disease. Attendees will connect in a safe space to share and give support to one another, creating an extended community as you move forward day-to-day with mito. Join host […]
Why are patients with Fibromyalgia, Chronic Fatigue, Lymes diagnosed with mitochondrial disease? How do I know I have Mito? What should my doctor look for to consider further testing for Mito? Join Dr. Amel Karaa to discuss the confusion that exists when diagnosing mitochondrial disease.
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
If you live in the Washington DC area, join us for a virtual MitoSocial on Saturday, September 9th to connect with others in your local community who share your story […]
Join IMP and MitoAction as we focus on raising awareness for TK2d. Throughout the day, we will share insights into what life is like living with TK2d and the challenges that families and individuals face each day.For questions or more information email info@mitopatients.org.
Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own […]
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
MitoAction recognizes that men impacted by mitochondrial disease face a unique set of circumstances. Whether you navigate living with or caring for a loved one with mito, the support calls for men provide an opportunity to connect with others who can relate best. If you are a patient, parent, caregiver, friend, or loved one, feel free to join […]
Meet Associate Professor Wong who will tell us about his exciting research into LHON, and how it could change the lives of many. What is rehabilitation after vision loss? Hear from a rehabilitation expert, Krister Inde about what is possible. Join in the discussion and ask questions of our experts. The event sponsored by IMP is open […]
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […]
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
Join us for the 19th annual Energy Walk in Boston!Gather your team and get ready to go for a walk all together throughout the zoo while raising awareness for mitochondrial disease! Whether you walk as an individual, create a team or volunteer, you’re making a difference in the lives of patients and families who rely […]
Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help make genetics feel more accessible to everyone.
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 4th Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
