MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Are you or a loved one living with mitochondrial disease and looking to connect with others in your community? Come join us via Zoom for the Indiana Mito Social! This is your chance to meet other patients and families, share your stories, and build your support network. Don't miss out on this opportunity to connect […]
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
Rhabdomyolysis can feel like being lost without a road map leading you home. Join us for an informal session to discuss personal experiences with rhabdo, from symptoms to recovery. Physical Therapist Pamela Tucker will present a draft protocol for rehabilitation post rhabdomyolysis with the aim of demystifying recovery and physical activity. She is currently in […]
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
This month our FAOD Support Call will look a little different! Rhabdomyolysis can feel like being lost without a road map leading you home. Join us at 8:15pm for a discussion about your child's personal experiences with rhabdo, from symptoms to recovery. Physical Therapist Pamela Tucker will then present a draft protocol for rehabilitation post […]
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […]
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion […]
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […]
MitoAction recognizes that men impacted by mitochondrial disease face a unique set of circumstances. Whether you navigate living with or caring for a loved one with mito, the support calls for men provide an opportunity to connect with others who can relate best. If you are a patient, parent, caregiver, friend, or loved one, feel free to join […]
Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help […]
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
Join MitoAction, along with host Katie Jackson, to connect with other families, caregivers and patients in your local community. Build your local community of support, give and share support and know that you are not along on your journey with mitochondria disease. No matter what stage of the journey you are in, you are welcome […]
If you live in Nebraska, this is a wonderful opportunity for you to connect with other families in your local community who are affected by mitochondrial disease. Attendees will connect in a safe space to share and give support to one another, creating an extended community as you move forward day-to-day with mito. Join host […]
Why are patients with Fibromyalgia, Chronic Fatigue, Lymes diagnosed with mitochondrial disease? How do I know I have Mito? What should my doctor look for to consider further testing for Mito? Join Dr. Amel Karaa to discuss the confusion that exists when diagnosing mitochondrial disease.
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
