MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Join us on Monday, October 3rd for the 9th Annual Matthew Harty Golf Tournament. Shotgun Start at 8:30am!The Matthew Harty Golf Tournament plays an essential role in the financial support of three very impactful programs MitoAction provides, the Matthew Harty Camper Fund, the Matthew Harty Scholarship Fund and Wish Trips.Thanks to the generosity of our donors, […]
The underlying cause of LCHADD retinopathy is not fully understood. This presentation will look at the research that identifies the cell in the eye that is initially affected and characteristics associated with vision loss. Dr. Gillingham will present early data on the natural history study and some new pre-clinical models to test novel treatments for […]
Join us for a support call just for the men of the mitochondrial disease community. Spend an hour talking about challenges, victories and anything else you'd like to discuss.
There are so many misunderstandings and misconceptions of genetic testing. Dave will attempt to clarify these issues, and provide tools to empower patients to participate in their care from a financial perspective. His objective will be to provide a clear and concise breakdown of appropriate testing for Mito families seeking a diagnosis, while keeping their […]
Join us for the 4th annual Rochester, NY Energy Walk!Join our hosts, Stacy, her cousins Kate and Erin, and the Bellaire Family as they work together to help spread awareness and raise funds to support the MitoAction community. Stacy’s dad, Todd and Kate and Erin’s dad, Jesi both lost their battles with mitochondrial disease. Stacy’s […]
This webinar will discuss different components of healthcare transition including finding adult physicians, insurance changes, and transitioning to adult life. It will offer practical tips to parents and caregivers to start working on transition even at a young age. We will have time for questions at the end.
