FAOD Monthly Evening Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call […]
MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
10 events found.
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, […]
Our Space: A space for young adults with Mito and FAODs to connect and network
Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own […]
FAOD Support: Exploring the Younger Years
Having a young child with an FAOD brings joys and questions, amidst uncertainties! Join VLCADD mom, Megan Cranshaw, and LCHADD mom, Stephanie Harry, for a lunchtime chat! Together we will discuss our journeys, tips, tricks and questions about parenting an infant/young child with an FAOD!
MitoChampions Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […]
Expert Series: All About Ketones
There has been interest in using Ketones as a treatment for FAOD. What exactly are ketones? This presentation will go over what ketones are, how ketones are made in the body and […]
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
Wondering Wednesdays with Genetic Counselor
Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help make genetics feel more accessible to everyone.
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
