MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Dr. Chatfield will discuss cardiomyopathy and LC-FAODs, share current research, the direction of which it is heading, and treatment strategies. She will also explore prolonged-QT and electrical issues, how this interacts with […]
Join us for “CPEO and Me” every 1st Thursday of the the month at 6pm (EST)! This is a special place carved out for individuals impacted by CPEO to share […]
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, […]
Mark your calendars and plan to join MitoAction for the hottest Derby Day event in Boston! Big hats, bow ties, incredible silent and live auction items, signature mint juleps, and the […]
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call […]
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, […]
This Mother’s and Father’s Day, we’re honoring the incredible parents in our mitochondrial disease community—the fierce advocates, tireless caregivers, and everyday heroes who show up with love and strength, no […]
Do you or your child struggle with toe walking? Are you curious about why it occurs and where the concerns lie? Is toe walking reversible and what strategies do physical therapists to […]
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, […]
Enjoy big hats, bow ties, incredible silent and live auction items, and signature mint juleps while helping raise money to improve the lives of patients and families affected by mitochondrial disease.
