MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Events
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Expert Series: Hope on the Horizon: The Vital Role of Patients in Clinical Research
Expert Series: Hope on the Horizon: The Vital Role of Patients in Clinical Research
There is unprecedented momentum in the mitochondrial disease clinical trial landscape, and the patient community plays a vital role in ensuring these trials have the potential to lead to new and effective treatments. This expert series aims to demystify clinical trial participation and answer your most pressing questions. Dr. Amy Goldstein, Clinical Director of the […]
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Expert Series: Understanding the Pediatrician’s Role in the “Growing Up Years”
Expert Series: Understanding the Pediatrician’s Role in the “Growing Up Years”
When you have a child with a rare disease, who sees so many different doctors, it can feel challenging to know how your pediatrician fits into the picture! How do you use this very special doctor to help you navigate your questions, collaborate with other doctors, and move through the everyday life of navigating a […]
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