MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Cardiac complications were often identified in symptomatic infants and children before newborn screening. Cardiac dysfunction can re-emerge or present for the first time during metabolic crisis at any age. This presentation will discuss the cardiac presentation in adolescent/young adults with LCHADD and discuss current efforts to better understand this late complication of LCHADD.
A child who has a diagnosis of mitochondrial disease has a significantly higher risk of being removed from the home by Child Protective Services (CPS). Attorney Beth Maloney will educate and inform families about the heightened risks, and offer parents a roadmap to help them navigate through the medical landscape. Every parent of a […]
During the third week of September (Sept. 18- Sept. 24, 2022), the global mitochondrial disease community will come together to raise awareness for the annual World Mitochondrial Disease Awareness Week.Learn how you can get involved at www.mitoaction.org/awarenessweek2022.
Join us for the MitoAction Energy Walk & 5K – Syracuse!Gather your team and get ready to go for a walk all together while raising awareness for mitochondrial disease! Whether you walk as an individual, create a team or volunteer, you’re making a difference in the lives of patients and families who rely on us. […]
Join us for a support call just for the men of the mitochondrial disease community. Spend an hour talking about challenges, victories and anything else you'd like to discuss.
DECEMBER 3, 2024
This holiday season, give the gift of hope to Mito families in need. By donating for Giving Tuesday, you’ll fuel MitoAction’s core mission or our most impactful programs like Dalia’s Wish and the Matthew Harty Camper Fund.
HOPE IN ACTION WITH MITOACTION
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