Making Our Way Through the Shifting Sands of Change

Managing change is something that our rare disease community is quite familiar with, as we are often forced to grapple with the “unknowns” that present themselves every day. Change, whether good or bad, can feel jarring, unstabilizing and challenge us in our ability to respond. Whether you are navigating a new symptom, new diagnosis, new policies, or the impact of a rare disease on your family life, we encourage you to sit with others in this safe space to discuss the murky waters of change. Join Becky Sansbury, Retired Chaplain/Author of “After the Shock” and Stephanie Harry, Patient Support Coordinator, for this UNRECORDED space.