Programs & Support
Your gateway to comprehensive resources and assistance for patients and family members struggling with mito and FAOD.
MitoAction offers a wide range of support, education and planning resources to empower individuals and families affected by mitochondrialRelated to the mitochondria. diseases. Explore our offerings and discover the support you need to
MitoAction’s programs and support initiatives are designed to help patients and their families at any stage of their journey with mito. Our goals is to connect people with shared experiences and to lessen the isolation associated with living with a rare disease, so they can navigate the challenges of mitochondrial disease with confidence and resilience.
Patient & Family Support
MitoAction offer patient and family support — from one-on-one calls to group meetings and socials — to people with mitochondrial diseases and their families. Our goal is to create personal connections that can help during the long and often difficult journey associated with mito.
Programs
Our programs provide positive impacts to the lives of people living with mitochondrial diseases and their families. Many of MitoAction’s programs have been dedicated to the loved ones of families affected by mito and their legacies honored through their continued impact on others.
Mitochondrial Disease Education
MitoAction has a number of education initiatives designed to help educate the mitochondrial disease community on the current state of diagnosis, symptoms, treatment, clinical trials and day-to-day living with mitochondrial disease. We believe that learning everything you can about mitochondrial disease will help patients and their families better navigate their journey with mito.
Planning & Preparation
When you have a rare disease, planning ahead and being prepared are critical. MitoAction’s Planning and Preparation resources help patients and their families prepare for immediate patient needs and common long-term issues.
