International Metabolic Conference

About the Conference

Join MitoAction and the International Network for Fatty Acid Oxidation Research and Management (INFORM) for the 2nd Annual International Metabolic Conference for Fatty Acid Oxidation Disorders (FAODs) held virtually on July 23, 24, & 25, 2021.

In partnership with Dr. Jerry Vockley and INFORM, MitoAction will assemble leading experts to present to families, caregivers, family members and clinicians.  The focus of the International Metabolic Conference is for families to learn more about disease management, current clinical trials, nutrition and the social needs of caring for a child or an adult with a rare metabolic disorder.  This is a great opportunity for families from across the globe to virtually meet one another, and have the opportunity to interact with professionals who specialize in metabolic disorders.

We will hear from a variety speakers: medical professionals, dietitians, social workers, neurologists, advocates and genetic counselors.  There will also be both fun and educational activities geared specifically for your elementary children and teens.  Everyone in your entire family will have a meaningful way to connect, engage and learn!

New this year, we will have subtitles for the main stage presentations so no matter where you live in the world, you can participate.

There is no cost to attend for patients, caregivers and family members.  We encourage medical professionals to join the conference for a small fee of $25.

Speakers Include:

Dr. Jerry Vockley, Dr. Mark Korson, Annette Hines (Esq.), Mark Worthington (Esq.), Dr. Melanie Gillingham, Dr. Sean Adams, Tobi Schaap (PT, DPT, OCS), Dr. Tiffany Devine, Dr. Eric Goetzman, Dr. Christopher Boys, Dr. Nicola Longo, Dr. Peter McGuire, Mary Sowa (MS, RD, CSP), Dr. Sandy Van Calcar, Dr. Georgianne Arnold, Ultragenyx Pharmaceutical and Every Life Foundation.