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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms of Mito
      • Treatment for Mito
      • Diagnosing Mito
      • Mito FAQs
      • Mito in the News
    • Diagnosis & Care
      • Mitochondrial Disease Diagnosis
      • Find a Mito Doctor
      • Mito Disease Treatment
      • Mito Cocktail
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Mito Life Hacks
      • Mito Resources
      • Living with Mitochondrial Disease
      • Care Coordination & Management
      • Managing Your Energy
      • Traveling with Mito
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAODs
      • Symptoms of FAODs
      • Diagnosing FAODs
      • Treatment for FAODs
    • FAOD Programs & Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • International Metabolic Conference
    • Day to Day with FAOD
      • FAOD Resources
      • FAOD Life Hacks
  • Programs & Support
    • Patient & Family Support
      • Mito411
      • Support Calls
      • MitoAction Memories
      • MitoPlaydates
      • MitoSocials
      • Become a MitoChampion
      • Positive Peach Packages
      • Liney’s Lovies
    • MitoAction Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund & Scholarship
      • Marcel’s Way Family Fund
      • MitoArtisan’s Playtime
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Planning & Preparation
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate to MitoAction
      • Honor and Memorial Giving
      • Matching Gifts
      • Another Helping
      • Giving Tuesday
      • Shop for MitoAction
    • Events
      • Events Calendar
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
      • Team MitoAction!
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • Become a MitoChampion
      • Share Your Ideas
    • Raise Your Voice
      • Externally Led Patient-Focused Drug Development Meeting on MELAS
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
      • Open Mito Mic & Art Show
      • MitoAction Memories
  • About MitoAction
    • Contact Us
    • Connect on Social
    • Our Team
    • Meet Our Partners
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I Think I Have Mito. Now What?

We’ve gathered all the basic information in one place, including educational resources, diagnosis information, clinical trial information, and more. Get Started

Need Support on your Journey with Mito?

Call 1-888-MITO-411 to speak with an experienced volunteer, or check out our Events Calendar for upcoming support group meetings.

Are You a Patient with MELAS or Caring for a Patient with MELAS?

We need to hear from you! Please take a 15 minute survey to help us capture the lived experiences, challenges, and priorities of those directly affected by MELAS. The insights you share will shape the upcoming Externally-Led Patient-Focused Drug Development (PFDD) Meeting held on February 10, 2026.
Take the Survey

Walk for Mito!

MitoAction Energy Walks play an important role in the impactful programs and services MitoAction provides. To date, MitoAction Energy Walks have raised over $1.2 million to help support mito patients and families! Join us at one of our four walks in 2025 and walk for mito!
Learn More and Find a Walk Near You

Finally, an App for Mitochondrial Disease!

MyMito is app designed to help you or someone you care for manage mito. It’s the first and only HIPAA-compliant digital health platform designed for managing life with mito!
Learn More

Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.  We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.

Support

Providing families, patients and caregivers opportunities to connect with others who share common experiences with mitochondrial disease.

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Educate

Increasing the understanding of mitochondrial disease by providing access to the most up-to-date and accurate information available.

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Advocate

Empowering the mitochondrial disease community with the tools needed to let their voices be heard for their individual healthcare needs.

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MitoAction Programs & Support

Mito411
Monthly Expert Series
MyMito App
Support Calls
Show All Programs & Support

Our Impact
At a Glance

Donate Today

1,800+

Mito411 Support Calls logged in 2022

18+

years serving families facing the daily struggles of mitochondrial disease

45+

scholarships granted to young adults with mito pursuing a college degree

Upcoming Events

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Oct 17
12:00 pm

Weekly Support Call

Oct 21
8:30 pm

Our Space: A space for young adults with Mito and FAODs to connect and network

Oct 22
8:00 pm

Wondering Wednesdays with Genetic Counselor

View Calendar

Expert Series

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Nov 7
12:00 pm - 1:00 pm

Expert Series: Two Generations of Mitochondrial Augmentation Technology: Clinical Advances in Treating Primary Mitochondrial Disease

View Calendar

Last Presentation

Expert Series: Managing challenges and maximizing success in chronic mechanical ventilation
Presented September 5, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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