Publications Overview
The Mitochondrial Disease Action Committee ("MitoAction") is a group of patients, family and friends living with or caring for individuals with mitochondrial disease. We have joined together with top clinicians from Mass General Hospital, Boston Children’s Hospital, and Tufts-New England Medical Center to improve the lives of those affected by "Mito". MitoAction is committed to providing relevant and current educational resources and publications for parents, patients, therapists, educators, physicians, and nurses.
MitoAction produces a variety of free print publications which can be ordered on this site, and shipped to you free of charge or in most cases, reviewed and printed from the Adobe Acrobat version. To request any of our available publications to be shipped to you at no charge please contact director@mitoaction.org.
In this section you will find...
Support Books
Children’s G-tube book-"When Jeremy Jones’ Stomach Stopped Working": An illustrated story for children, parents and siblings about g-tubes.
Adolescent Support Book-Coming 2008
Patient Handbook-"Living with Mito" series: Tips and advice written by patients.
Reference book for health professionals
Mitochondrial Disease Management Guide: A Reference for Pediatricians and Primary Care physicians (available September 2007)
Read MitoAction's Interviews with Health Professionals
Updates on CoQ10. A conversation with compounding pharmacist Arthur Margolis, R.PH.
Articles
Mito Minutes - Written by board certified pediatrician Dr. Gwenn O’Keefe.
School Advocacy Manual/DVD-coming in 2008
For more information, questions, or publication questions, e-mail director@mitoaction.org
To support projects like these publications, donate here.