Important Notice
Thanks to the work of several volunteers and one really SUPER volunteer, we now have many more links than appear here in our Web Resources Database:
Registered users (for free) may add their own links and vote for and comment on the links others posts, similar to Digg.com only no advertising.
Useful Websites
Web Resources
Accessible Outdoors
The Division of State Parks and Recreation's Universal Access Program
Boundless Playgrounds®
Adaptive/Assistive Technology
Toy Guide for Differently-abled
Lekotek Online
The country's central source on toys and play for children with special needs
Texthelp Systems Inc
is the worldwide leader of literacy software solutions
Clothing for Physically Disabled Youth
Wheelchairs for children
Assistive technology solutions
Assistive/Adaptive technology
Camps and Programs for Kids
Dream Street Foundation
Dream Street provides camping programs for children with chronic and life-threatening illnesses
Hole in the Wall Gang Camp
The Hole in the Wall Gang Camp provides year-round activities for young cancer patients and other seriously ill children (and for their siblings), both at camp and in their own communities
The Silver Lining Foundation
The Silver Lining Foundation brings children who have cancer and other life-threatening illnesses to a safe haven in Aspen, Colorado- 1 week camp
Disability Information
National Council for the Support of Disability Issues (NCSD)
ADA Portal
Disability rights education & defense fund
Cornucopia of Disability Information
Consortium for Citizens with Disabilities
DisabilityInfo.gov
National Council on Disability
National Organization on Disability
Disability Resources
Education
Toolkit from the office of Special Education
National Center for Learning Disabilities
National Information Center for Children and Youth With Disabilities
Office of Special Education and Rehab
Association of Higher Education and Disability
Stop Bullying Now
Employment
Office of Disability Employment Office
Financial Assistance
Financial Assistance Links www.ncsd.org/Link/finhelp.htm
G-tubes & IV
Oley Foundation
provides information and psycho-social support to consumers of home parenteral (IV) and enteral (Tube-fed) nutrition (homePEN)
Kids with Tubes
Support for parents and caregivers of tube-fed children
Hospice/End-of-Life Issues
Children’s Hospice International
Compassionate Friends, Inc.
Compassionate Friends, Inc., is a nationwide nonprofit self-help organization offering support to bereaved parents and siblings after the death of a child
Legal
Disability Rights Commission
www.drc-gb.org/default.aspx
Pro Bono Help in All States
www.ptla.org/links/services.htm
Magazines
Coming soon...
Mitochondrial Disease Organizations and Information
The United Mitochondrial Disease Foundation (UMDF)
The Muscular Dystrophy Association
Mitochondrial is one of the neuromuscular diseases served by the MDA
The Mitochondria Research Society
National Organization for Rare Disorders
Mitochondria Research Portal
Wish Upon A Cure
David P. Campbell Foundation for Pediatric Mitochondrial Disease Research
Rebecca's Guide, Inc.
The Genesis Fund
Marcel’s Way
The Neuromuscular Disease Center
good Mitochondria diagrams
Online Web Pages
Free, personal, private Web pages that help family and friends communicate when someone is facing illness
www.Caringbridge.org
www.Carepages.com
Parenting
MUMS
National Parent to Parent Network is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare disorder, chromosomal abnormality or health condition
For Parents of children with special needs
www.projectprompt.com
A new way of thinking
www.disabilityisnatural.com
Social Security
Social Security
www.social-security-disability-claims.org
Social Security, Disability and SSI answers
www.disabilitysecrets.com
Support
Bandaides and Blackboards
about growing up with medical problems
Brave Kids
Brave Kids works to broaden the support and resources available for children who have chronic, life-threatening illnesses or disabilities
Starlight Starbright Foundation
The Starlight Starbright Foundation creates projects that are designed to help seriously ill children and adolescents cope with the psychosocial and medical challenges they face
Sunshine Foundation
The Sunshine Foundation grants dreams for seriously ill, challenged, and abused children
Chai Lifeline
Chai Lifeline is a nonprofit Jewish organization that provides support service programs to children and their families in crisis
Children's Hopes & Dreams Foundation
Eli’s Angels
Our Goal is to mail literature to children diagnosed with Leigh’s syndrome and other mitochondrial or metabolic disorders
Therapies
Horse Power
Article about equine therapy
Travel
Ronald McDonald Houses
provide a home-away-from-home for the families of seriously ill children who are receiving treatment at nearby hospitals Air Care Alliance
AirLife Line
Air Mercy
American Airlines
Miles for Kids in Need Angel Flight America
Passengers with Disabilities (air travel)
Articles or Personal Web Stories
Heartbeats for MitoAnn, a Mito mom, writes from the heart www.heartbeatsformito.org
The Thorell Family www.mitokids.org/index.html
"Promises to keep"