Education Overview

This area of our site is dedicated to helping families, teachers and schools navigate the complex world of mitochondrial disease. Because the symptoms of "Mito" are so varied and each child is uniquely affected, working with children affected by mitochondrial disease can be especially challenging. Use the Menu to the left to explore in-depth resources and tools written especially for kids with Mito. Also, please keep checking in, as this site will continue to offer updated and new information on a regular basis.

Children with "Mito" can attend school... with the supportive tools that can help a student maintain health and energy throughout the day. Teachers, parents and students, with the guidance of the child’s physician, need to work together as a team to promote the best learning experience possible.

As these months have passed, the efforts put forth by everyone to create this educational section of our website has been amazing. The daunting hours of dedication, which were entirely volunteer based, as well as the multiple edits at times became quite challenging. It was fascinating as well to watch families struggle with illnesses and complications from their own mito symptoms or a loved ones, and never walk away or dismiss themselves from their original commitment to make this portion of our website occur.

Please remember that the site may not be perfect, it will have errors, but it was done with passion, concern and from the best intentions of all the volunteers. With that said, please let us know if there is something missing, if you feel something isn't worded correctly or if you feel there is an area you would like to see that isn't here. It was and is our goal to educate, advocate, support and incorporate all that we can to help our Mito affected families. Truly, thank you just isn't enough, but it is heartfelt and I feel privileged for having been able to be a part of such a wonderful resource for our Mito patients and families.

It is with great honor and appreciation that I thank each and every one of you for your time, efforts and passion in aiding MitoAction to present a place where parents, educators, physicians and loved ones can go to find immediate support, advocacy and educational information to aid themselves and their family members, students, or patients. To all of you, my heartfelt thanks, and gratitude! We did it! Bravo!

MitoAction Education Chairperson-Kirsten Jo Casale
education@mitoaction.org