MitoAction Blog

January MITO Meeting: Ideas from an Occupational Therapist

Cristy Balcells — Mon, 05 Jan 2009 11:34:25 -0800

MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH

Genetic inheritance in mitochondrial disease: Fact vs fiction

Cristy Balcells — Mon, 22 Dec 2008 00:00:00 -0800

MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH

"Thinking" about Mito: Neuropsychological problems in mitochondrial disease

Cristy Balcells — Mon, 10 Nov 2008 00:00:00 -0800

October MITO Meeting: Tummy Troubles

Cristy Balcells — Wed, 01 Oct 2008 06:02:24 -0700

MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH

Highlights from the MitoAction Walk 08

Cristy Balcells — Fri, 26 Sep 2008 11:55:22 -0700

September 21st, 2008
Cambridge, Massachusetts

615 people came together for one cause, and the result was incredible!

Read the 2008 Mitochondrial Disease Awareness Week Press Release

Five years ago, before MitoAction even existed as an organization, a family who is dealing with the diagnosis of mitochondrial disease may have been alone in their efforts to understand and find support and advocacy for the disorder.

September MITO Meeting: "Mitochondria - the Big Picture"

Cristy Balcells — Wed, 20 Aug 2008 08:32:13 -0700

Listen to the recording of this meeting

September kicks off an exciting month for the mitochondrial disease community. International Mitochondrial Disease Awareness week (September 21-28) inspires many to renew their commitment to actively raise awareness and support for the many adults and children who are affected by mitochondrial disease.

Rocco, You're Not Alone

Cristy Balcells — Fri, 08 Aug 2008 04:13:01 -0700

Congratulations Rocco on making it to the World Series! We continue to offer our encouragement and support.

Original Post August 8, 2008

Tampa Rays MLB player Rocco Baldelli Living with Mitochondrial Disease

He's in the news. His symptoms are vague. He looks tired.

The Dosing Debate: CoQ10 and Creatine in mitochondrial disorders

Cristy Balcells — Thu, 07 Aug 2008 06:59:57 -0700

This month MitoAction welcomed Dr. Fran Kendall of Emory University's Department of Human Genetics mitochondrial program to discuss the dosing debate around CoQ10 and creatine.

Listen to the audio recording of the meeting here (right click or save as to download)

August MITO meeting: CoQ10 & Creatine

Cristy Balcells — Tue, 29 Jul 2008 08:33:53 -0700

MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH

Join us this month with Dr. Fran Kendall from Emory University Department of Human Genetics as we dig deeper into confusion surrounding two components of the "Mito Cocktail": Coenzyme Q10 and Creatine.

Drug Trial begins targeting Mitochondrial Diseases: EXCLUSIVE AUDIO INTERVIEW

Cristy Balcells — Sat, 19 Jul 2008 06:51:51 -0700

Is there hope for a cure for Mitochondrial Disease? Perhaps the answer is closer than we thought.

On July 15, 2008 Edison Pharma and partner Penwest Pharmaceuticals announced that A0001, an "improved" variant of Coenzyme Q10 (CoQ10), has entered Phase 1 clinical development with healthy volunteers. Edison predicts trials in patients with inherited mitochondrial disease will begin in 2009.