MitoAction Blog
Rocco, You're Not Alone
Tampa Rays MLB player Rocco Baldelli Living with Mitochondrial Disease
He's in the news. His symptoms are vague. He looks tired.
- Aug 8, 2008
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The Dosing Debate: CoQ10 and Creatine in mitochondrial disorders
This month MitoAction welcomed Dr. Fran Kendall of Emory University's Department of Human Genetics mitochondrial program to discuss the dosing debate around CoQ10 and creatine.
Listen to the audio recording of the meeting here (right click or save as to download)
- Aug 7, 2008
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August MITO meeting: CoQ10 & Creatine
MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH
Join us this month with Dr. Fran Kendall from Emory University Department of Human Genetics as we dig deeper into confusion surrounding two components of the "Mito Cocktail": Coenzyme Q10 and Creatine.
- Jul 29, 2008
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Drug Trial begins targeting Mitochondrial Diseases: EXCLUSIVE AUDIO INTERVIEW
Is there hope for a cure for Mitochondrial Disease? Perhaps the answer is closer than we thought.
On July 15, 2008 Edison Pharma and partner Penwest Pharmaceuticals announced that A0001, an "improved" variant of Coenzyme Q10 (CoQ10), has entered Phase 1 clinical development with healthy volunteers. Edison predicts trials in patients with inherited mitochondrial disease will begin in 2009.
- Jul 19, 2008
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Pain
July 11, 2008
MitoAction welcomed Dr. Irina Anselm, pediatric neurologist and head of the mitochondrial disease clinic at Children's Hospital Boston to discuss the topic of pain for patients with mitochondrial disease at our monthly international teleconference.
The following is a transcript of the presentation given by Dr. Anselm:
- Jul 13, 2008
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July 2008 Meeting: Pain
Listen to the audio recording of this meeting
When a person is diagnosed with cancer, several keywords probably come to mind. Chemotherapy, metastasis, remission, radiation...and pain.
What are the keywords we automatically refer to when we hear "mitochondrial disease"?
"Mito...what?"
- Jun 30, 2008
- Comments: 0
Mito Mom wears many different hats!
Well today is no different from any other day when you have two children with Mitochondrial Disease ages 14 and 18. It is chaotic, tiring, inspirational, as well as challenging to say the least. Better get my hats ready!
- Jun 30, 2008
- Comments: 1
Coordinating Care for Mito Patients: An impossible dream?
Too many doctors? Coordinated care for the patient with a mitochondrial disorder.
Based on the MitoAction international teleconference meeting held June 6, 2008
Listen to the audio recording here
- Jun 9, 2008
- Comments: 1
Education Content Now Available
It is with great pride and sincerity that I ask all members, families and friends of
MitoAction to please congratulate and recognize the following mitochondrial disease patients, moms, care providers and supporters of MitoAction who so quietly and humbly volunteered 1000's of hours so that Mito Families, could have a place to go to when they wanted to obtain more information about Mitochondrial Disease and educating their children and loved ones. - Jun 2, 2008
- Comments: 0
Sandra's Story
Sandra Russell is a mother of two boys, ages 22 and 18. It's no wonder she's tired after raising two boys, with her husband Gordon, and co-owning and running a chain of retail stores. But her fatigue was more than the norm, says Gordon. "The first noticeable symptom was her hearing loss, and she had trouble keeping up with the busy pace of our life. I became frustrated with this as I felt like I was always having to remind her of the tasks she was supposed to be doing."
- May 27, 2008
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